Making a Difference for Rare Diseases and Disorders in the New EU Legislature
Hosted by MEPs Jonás Fernández,Tilly Metz, Kristian Vigenin, and Andrey Kovatchev, the representative organisations of the Skeletal Dysplasias Alliance (SDA) across the EU are pleased to invite you to the 2024 Summit on ‘Making a Difference for Rare Diseases in the New EU Legislature’.
Date: November 5th from 11:00 to 13:00 CET
Location: European Parliament in Room Spaak 7C50.
Regsister in the following link to attend both online or in person.
AGENDA: SKELETAL DYSPLASIAS ALLIANCE SUMMIT 2024
