Skeletal Dysplasias Summit 2024

Making a Difference for Rare Diseases and Disorders in the New EU Legislature

Hosted by MEPs Jonás Fernández,Tilly Metz, Kristian Vigenin, and Andrey Kovatchev, the representative organisations of the Skeletal Dysplasias Alliance (SDA) across the EU are pleased to invite you to the 2024 Summit on ‘Making a Difference for Rare Diseases in the New EU Legislature’.

Date: November 5th from 11:00 to 13:00 CET

Location: European Parliament in Room Spaak 7C50.

Regsister in the following link to attend both online or in person.

AGENDA: SKELETAL DYSPLASIAS ALLIANCE SUMMIT 2024

2 Comments:
31/10/2024

My asistence is because my granddaughter has achondroplasia, she is a child of seven months.

01/11/2024

Es nuestro deseo participar, para adquirir más conocimientos

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