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The first Skeletal Dysplasias Alliance
in Europe
SD stands for Skeletal Dysplasias: a group of more than 450 rare conditions associated with disorders of cartilage and bone, causing varying degrees of short stature.
The SDAlliance aims to reinforce the unity of all people with SD in Europe to articulate a common voice and make impact before policymakers and society. We advocate for the rights of people with SD to ensure that they enjoy quality life on an equal flooting with the rest of the population.
An European policy initiative formed by organisations representing the interest of people with Skeletal Dysplasias
Our history
This Alliance aims to enhance the action of the social organisations at European level, in a common journey of fighting for the dignity of SD people, strongly affected by historical stigma and discrimination.
2020
First meeting of representative group
2021
ASDD Consensus
Paper
2021
Institutional event
2022
Formation of Alliance
We are SD Associations from different countries and we count on the support of experts and political patrons
Our priorities
The understanding of these multifaceted conditions, the eradication of prejudices about them and the pursuit of policy solutions are essential to ensure that people with SD are treated with dignity and justice.
Historical stigmatisation translates into numerous challenges for people with ASDD. In addition to the varied and serious health problems, which are often under-researched and under-recognised, they still suffer from severe discrimination at school and in the workplace.
Social stigma
SD are not only a range of health conditions, but also disabilities with a strong social burden behind them.
Healthcare
SD are a group of more than 450 rare conditions associated with disorders of cartilage and bone, causing very degrees of short stature.
Recognition and Accessibility
In most EU countries, SD entities to ask for social benefits in order to reduce the limitations and live independently on an equal footing with the rest of the population.
Raise your voice
Making impact
Do you want to join our community?
Latest News & Events
The European Parliament Makes Progress Towards EU Disability Card
On January 18th, the Committee on Employment and Social Affairs (EMPL) of the European Parliament debated on the European Disability Card, adopting a proposal for
The Importance of Psychological Support in the Care and Treatment of Achondroplasia and Other Bone Dysplasias
Miriam Pérez Vallmitjana and Ignacio Ginebreda Martí ABSTRACT For more than 30 years, psychological support has been provided by our department to all patients affected
Reflecting on the Skeletal Dysplasias Summit 2023: The Path to Dignity
On November 30, 2023, Skeletal Dysplasias Alliance Summit brought together representative groups of people with Skeletal Dysplasias (SD) from France (APPT), Spain (ALPE), the Netherlands